17- Endo bindo
I woke up at 6:00 am this mornig to go to my endocrinologist appointment before work. I was excited to get an excellent report because my body with the weight gain, better attitude with counseling and meds is allowing my body to function better, ok well fucntion, like actually do what it need to do. The previous evening, I was bombarded with, you're looking greats and glad to hear your feeling betters from our friends, I barely was able to ask how they were doing. The show provided good comic relief from the tention around here. I won't go into detail about mom daughter relations at the moment, but just know I won't allow my mom to read this blog for a reason. I was much improved from last year when they saw fail and sick me. Even though it was great to hear that I looked well and for the most part feeling well, my energy level has been declining this past week. I did look hot, in my red patent wedge shoes, black skinny jeans and animal print top my breathing wasn't so hot. I'm speculating my small airways are suffering a bit with the temperature changes and just reaching 28 days off Cayston, I just felt I had this great facade over a mess of failing body parts. But I smiled and laughed and tried to be present. Even if my lungs were not doing their part, I was looking forward to reviewing how the rest of body was pulling ahead.
MY BLOODWORK WAS EXCELLENT. My doctor was encouraged that my hormones were almost stable, so the hormone supplements have been workng and now it's time to gradually take them away to allow my body to produce them by themselves. It is going to be a little trial and error because my sinuses have also been responding very well to the stable hormones. And my face, we'll see if my face, which has cleared can stay clear...Oh estrogen how I love and hate you....
a. Thyroid: BIG FAT A+
b. Cortisol level: the best side of normal ever, meaning my body is not stressing, it is coping well, now if I can only get my mind to join it.
c. I weighted 125 lbs...I think I just coughed it off in the past 2 weeks with actually having a life again and more coughing...time to eat Christmas cookies!!
d. Kidneys were fine and she only did a selective nutrient panel because I said I couldn't afford anymore medical bills this year. So we reviewed my supplements and for once, a doctor said, this is all fine, when we see how everything is in a few months, we can add, I want you to consistent. Once you are comfortable then we can add and subtract....I love homeopathic medicine. I love my endo, she is an MD but she is Chinese and has formal eastern medicine training, which is much more in tuned with the body and working with the body versus western medicine...sorry lost focus...
e. Then we discussed what I have been avoiding for too long and need to do something about, ANEMIA. Anemia runs in my family and it is a problem because if you are anemic your hemoglobin isn't strong enough to carry the best oxygen load, so with a compromised oxygen exchange in my lungs anyway, anemia is serious. It is why I still do not have the stamina and energy now that I have everything else fixed up. But see here lies the problem, iron comes from food, but not enough and I don't absorb it all due to my problems and gluten intolerance also leads to iron mal-absorption. When I take iron pills, the bowels get all stopped up, which is a problem sometimes anyway due to CF. Let's just say my health status is COMPLICATED. I agreed that I would look into this iron injection because now that I'm not worrying about my hormones, weight, allergies, sinuses, stomach EXCRETA....I can focus on anemia. That is how I feel, Cystic fibrosis ETC. I had to fill out a insurance claim form and it says list diagnosis, illness and I wrote, cystic fibrosis, celicas, anemia, ETC. It is what it is and now I will deal with it all by going to sleep and going to go eat some steak, spinach and maybe some red dirt so I have energy for all the holiday goodness going on this weekend.